We are in the final stretch…less than 100 hours as my mother-in-law excitedly texted me this morning. I am consumed with emotions…if you’d have asked me 2 months ago what I thought they’d be “fear” would have topped this list. I was terrified back in November at the thought of leaving the hospital…today…not so much. I’m excited, nervous, anxious, and quite honestly sad. While I cannot wait to start life at home with my family I have developed a “family” here in the form of fellow parents, nurses, doctors and even my trusty social worker. All were strangers to me just 6 months ago, individuals I never imagined my path would cross so intimately with. There is no way to describe the bond I’ve built with these people. I have heard, seen and felt things here that no one is built to endure. I’ve been referring to this experience as a “waiting game” for months now. We are so fortunate that we have been waiting for her to get better, every day as others have fallen weaker our little Riley has been getting stronger.  I’m sitting in my room counting down the hours knowing that only steps away there are other families counting down the breaths. Grief, sadness, worry and fear can be felt in the corridors walking past clusters of doctors huddled outside in rounds. Passing that every morning and trying to tune out their voices as they mutter “suffered another seizure…”, “spiked a fever overnight…”, “we will do our best to keep her comfortable…” will not be something I’ll miss but I will damn sure never forget it. I’ve also seen some serious joy…I mean some excitement and happiness that radiates through all the negativity. Everytime a patient leaves cheers erupt at the nurses station and that big bell on the wall can be heard down the corridor, that’s really the only goal when you become a resident of 7 Long…one day ring the bell. I am so happy but let me tell you there is some strong sorrow…it’s like I feel we’re jumping ship or something and leaving everyone behind. I’ve been staring out these windows for months jealous of the life still happening out there while we’re trapped, in awe of those who are oblivious to the reality that others are facing. I am overjoyed to be so close to experiencing everyday life again but there will not be a day that goes by that I won’t remember the world within these walls. This hospital saved Riley’s life and forever changed mine.  4. More. Days.


We’re getting down to the wire, for those who would like to donate to help get us ready for the transition I’ve attached the links below. Thank you again to everyone who has taken the time to follow along and support us on this crazy ride! xoxo

Thank you, thank you, thank you

Amazon Wish List: http://www.amazon.com/gp/registry/wishlist/37IX0FPKGMSST

GoFund Me: http://www.gofundme.com/3x0iig

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