All you positive thinkers and Riley supporters really brought your A-game yesterday because shortly after posting the update I was delivered the best news since the day we walked through these doors.
Riley’s t-cell function is at 21%.
That sentence deserved it’s own line, hell it really should have been in all caps…let’s try that again.
RILEY’S T-CELL FUNCTION IS AT 21%.
Yeah, that’s better. What exactly does that mean? I’ll hold all the medical mumbo jumbo and get to the point…it means we’re going home. Uh-oh…I just started crying…typing that out apparently made it more real. Oh man. We’re going home. Not today, not tomorrow, but soon. Those numbers were what we were waiting for…actually we were only waiting for function to get to 10%, Riley threw in the extra 11% simply because she’s awesome and knew Mom and Dad could really use the peace of mind those additional numbers give. Thanks kid. The discharge talk is no longer make believe. No longer dependent on results. It’s real. It’s happening. Ok, ok right quick it’s reality check time. Can things change? Yes. Things can always change. Numbers could drop, she could get sick or some other hurdle could position itself in front of us. That is and will likely always be the story of our life. But, this is what we have been waiting for. She’s working. Her immune system while still compromised is functioning and day by day, fingers crossed will continue to improve.
Yesterday after I got the news I looked at her and all of a sudden she didn’t seem so fragile. She looked stronger than ever. She smiled like she knew. Maybe that’s why she’s always smiling…she’s always known.
It’s crunch time. There is so much to do. If all goes to plan we are looking less than 2 weeks until we’ll be ringing that bell in the hallway. Let the head spinning commence. Please continue with the positive thoughts and prayers, we want smooth sailing, no suprises, no more bumps. Just home. Now if you’ll excuse me I’ve got some lists to make 😉 xoxo
For those who would like to donate or help in any way please follow the links below…as always email me with any questions. Rileyjanebrown@gmail.com
Amazon Wish List: http://www.amazon.com/gp/registry/wishlist/37IX0FPKGMSST
GoFund Me: http://www.gofundme.com/3x0iig